Welcome.

I always thought of blogs as being narcissistic, business related, or as my sister's, a way of keeping in touch or memorializing.

But, by necessity, I am learning a lot about myself. I find I need to get my thoughts out, and it helps me to know that someone else will read them. So I have created this little space for myself, to express the things I have trouble saying (be it emotional or physical trouble), to share what I'm going through, and what I'm learning through it.

I absolutely welcome comments. It's nice to know how people relate to what I'm saying.
To send me a private message, please e-mail me: flylittlewordsfly@gmail.com
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Monday, 15 August 2011

Superviviente - Survivor

Today's musical selection comes to you all the way from Spain. Ella Baila Sola was a group/duo that had huge success in Latin countries in the late 90's. I really like their folk/pop style - its like a populist version of the Indigo Girls. But of all their songs, many of which are about female empowerment (just like the Indigo Girls), this one  - Superviviente - is special, and not just because of the killer harmonies and catchy tune.

I couldn't find a video of the song, but here is a black-screen with the song playing, and one with videos of waves.

This is a song that I turn to when I'm down, when I'm up, whenever there is any kind of upheaval in my life. It's been on my soundtrack for break-ups, clean-ups, cheering-up friends, low-down, and all kinds of other moments. Sometimes I listen to it and it is about me. Other times, it's about people I admire, or I love.

Nunca te he visto más alto ni más guapo ni mejor

te han sentado bien los años y me alegra oir tu voz 
en el fondo de tus ojos donde guardas tus caminos 
lo que llena y lo que duele lo que nadie más ha visto 
es allí donde me quedo y en tu nueva paz respiro 
y me crece verte fuerte porque todos somos niños

Saturday, 13 August 2011

Ownership and acknowledgment vs Bragging and Boasting

Warning: bragging and boasting below! Ok, hopefully it will only be self-acknowledgment, but still, you've been warned!

Much of my therapy session the other day twisted over to the fact that I have a real problem owning my personal accomplishments, as do many many women in this world. We are taught (implicitly) that to toot our own horn is bad form, un-ladylike, and downright rude. After all, "pride cometh before the fall," and Icarus did fall. Boastful people are annoying as anything, and braggarts are rarely respected or believed. So we hide our accomplishments, don't express pride, and diffuse compliments and credit that is given to us. In effect, we dis-empower ourselves.

So I had a little chat with the aspect of my self which believes all that to be true. And she told me that nobody would like me if I took ownership of my success. Luckily for me, I was able to refute that idea, by recalling times when I have taken ownership and have not suffered for it (yes, I do actually talk to myself, and yes, it does help - it's part of how Gestalt works). You see, what I realized that day is that bragging and taking ownership of our accomplishments are not at all the same thing.

Bragging comes from a place of insecurity - it's like saying "Look what I did, that makes me great, now will you like me? Please see how awesome I am! Look at me, I'm here! Please like me!" It hides self-pity in the cloak of self-importance. And all self-importance ultimately does come from a very small and dark little place - it is quite simply overcompensation. I've done my fair share of that, mostly in my younger years. And no, it did not make me popular. Those kinds of actions rarely appeal to emotionally secure people. They appeal to people who are themselves insecure and are looking for someone behind whom they can hide. Bragging can also be about taking credit where it is not due. Trying to compensate for what we see as our own failures by taking credit for other people's successes.

Thursday, 11 August 2011

Without my Safety Net

So my parents are out of town. I went into therapy today, and said I really feel their absence. My therapist nodded understandingly, and asked how long they've gone. They left yesterday. Yep.

For the last two days, my driving, food preparation and clean-up activities, not to mention child-care have just about tripled. Yesterday, I actually left the house 3 separate times. I took my son to camp, brought him home, and took him to his soccer game. Unheard of. And I am feeling the effects. Yes, I can do it, no, it's not so bad. But it's interesting.

Any other Wednesday, one of my parents drives us down to the soccer field, drops us off right there, and goes to part the car. Afterwards, I will walk partway to the car. Last night, it was my 3rd drive of the day (I know, that doesn't even do anything for most people, but for me it is a very big deal) and it was extremely difficult to find a space to park. After walking a full 8 minutes to the soccer field, I lay down on the grass to allow my heart to settle back into a normal rhythm. I was down so long, that I even got a text from Stepmom, asking if I'd just dropped the boy off and left. She didn't even see me there. A painfully slow walk back to the car, and I was able to get home just fine, but quite tired out.

Tuesday, 9 August 2011

My Support Team Wins!

I am really very touched and excited, to have won a prize for something I did not do!

I am an active member on the message boards at the But You Don't Look Sick community, and a few weeks ago, we were invited to share our stories about the people in our lives who are not professionals, but take care of us just the same - our "spoon helpers" - the people "who are there at 03:00 to hold our hair out of the way when we're being sick? Or who instinctively know when we need a glass of water and more painkillers? Those who don't have to be told what is going to leave us without spoons and those who go out of the way to make life "comfortable".

The members of the forum were then invited to vote on their favourite "spoon helper", and I am really touched that my support team received the most votes. If you have read this blog at all, then you know how grateful I am to so many people who make my not-so-easy life very manageable. But this was an opportunity to share how much I am helped and supported with the community which helps and supports me in so many other ways from afar. This is what I wrote:

There are so many people on my 'team' that I don't even know where to start. Who do I talk about?

Saturday, 6 August 2011

Photo Exhibit

Last month, I got a message on one of my forums from a young man who had sent out a survey. The photo series he created for his graduation exhibit is online. It is called "running on empty; living with an invisible illness" and is a reflection of life with Myalgic Encephalomyelitis.

It took me a while to decide to share this here, because after all, I hadn't come out and said "I have ME" here. But now that I have, I want to share these images with you.

http://gillfood.wordpress.com/2011/06/21/running-on-empty-living-with-an-invisible-illness/#comment-10

The photos range from quite literal and obvious interpretations to subtle and haunting images. I identify with many of them. I think the one which speaks loudest to me is the one with the young girl in the playground laughing with her friend, while her legs are tied with tape that reads "fragile".

Anyway, if you want to know what it is like to live in my body, check out the photos. I think this young man did a tremendous job of evoking the feeling of living with ME.

Wednesday, 3 August 2011

Synchronicity and Paradoxes strike again

I had a wonderful session today with my therapist. We celebrated what we both feel is a major integration of several weeks, if not months, worth of work. It seems that Tree of Life, the film, acted as a catalyst for me. As I wrote earlier, it had a huge impact on me, and having now read some reviews, it seems it had the same effect on several critics as well. What I didn't realize was how synchronous it was for me to see it at this moment in my life, considering the journey I'm on and the work I've been doing in therapy.

As I mentioned in my earlier post, the film deals with the past that we carry with us. It shows snippets of life as we remember it - it is really, more than anything, a collection of memories and impressions. And in those impressions, I saw myself, I saw my parents, I saw my sister, I saw our children, and our cousins, grandparents and aunts and uncles, and I saw them all as children and as parents. The movie showed me my childhood and my son's childhood in such a way that it helped me see beyond the hurts and pains that fertilize each and every life.

Monday, 1 August 2011

What's in a Name?

CFS. ME. CFS/ME. CFIDS.

For the first time, I'm tying these in my blog. I don't want to hide what I have anymore. I'm comfortable enough with the labels, I've had nothing but support, my insurance has been approved, and I have realized there is nothing for me to fear in openness.

So why all the names? Chronic Fatigue Syndrome, Myalgic Encephalomyelitis, ME/CFS, CF Immuno Deficiency Syndrome... all of these have at one point or another been used as labels for the illness from which I suffer. The international medical community has yet to agree on what to call it, what it is, how it should be treated, and under what category to put it. There are a ton of politics, and plenty of conspiracy theories out there that go into detail on this. I can't waste my limited brainpower trying to figure them all out, especially when, no matter what you call it, I still have it.

I was prompted to write this post and open up further particularly because of a ground-breaking document that was published mid-July. There is now an official, international document, put together by the best minds in CFS/ME related studies from around the world that solidifies the definition of ME.