tag:blogger.com,1999:blog-3275108546936971950.post7837377351944063677..comments2023-04-28T05:34:46.132-04:00Comments on Fly Little Words, Fly! - Conversations in My Head Gone Public: Post-Exertional Neuroimmune ExhaustionAndyhttp://www.blogger.com/profile/16610580839702257279noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3275108546936971950.post-47382790449156932612011-09-08T10:39:44.837-04:002011-09-08T10:39:44.837-04:00Thanks, Mike, I needed that reminder to look at th...Thanks, Mike, I needed that reminder to look at the big picture in terms of recovery times. The sawtooth is frustrating. I hope the mindfulness sessions will only add to the now-ness of my attitude, and maybe help me let go of those expectations and comparisons. Thanks!!!!Andyhttps://www.blogger.com/profile/16610580839702257279noreply@blogger.comtag:blogger.com,1999:blog-3275108546936971950.post-54717970315671398062011-09-08T02:25:06.549-04:002011-09-08T02:25:06.549-04:00Mrs Axemurderer nailed it alright, especially the ...Mrs Axemurderer nailed it alright, especially the bit about always feeling like recovery is within reach. I suppose that's better than the alternative.<br /><br />This kind of chronic condition neither progresses nor heals in a nice steady linear fashion. It's a sawtooth. The trend over months (and, if it comes to that, years) is your guide, not how you feel this week compared with last week. One lesson from that is: never panic because you can't do something you could do yesterday.<br /><br />Your natural tendency towards organisation should see you develop a box of epxectations for each level of function that you experience, and each morning (I use that word loosely) you select the box that matches your capacity that day.Mikehttp://www.moblet.netnoreply@blogger.comtag:blogger.com,1999:blog-3275108546936971950.post-70232806003027366612011-09-07T10:36:34.882-04:002011-09-07T10:36:34.882-04:00Courage. I'll add that to my mantra.Courage. I'll add that to my mantra.Andyhttps://www.blogger.com/profile/16610580839702257279noreply@blogger.comtag:blogger.com,1999:blog-3275108546936971950.post-23914657948831517332011-09-07T10:26:35.410-04:002011-09-07T10:26:35.410-04:00Life is mostly froth and bubble, two things stand ...Life is mostly froth and bubble, two things stand like stone-Kindness in another's trouble, COURAGE in your own.<br />~~~Adam Lindsay Gordon~~~cuqnoreply@blogger.comtag:blogger.com,1999:blog-3275108546936971950.post-68760726037962276072011-09-07T10:00:50.516-04:002011-09-07T10:00:50.516-04:00Heather, this one was really bad. I wish I could a...Heather, this one was really bad. I wish I could answer, but until I have my naturopath or family doctor look at the results, I won't know if it was of any use at all. I promise I'll post as soon as that happens!Andyhttps://www.blogger.com/profile/16610580839702257279noreply@blogger.comtag:blogger.com,1999:blog-3275108546936971950.post-57309347853446107972011-09-07T09:51:43.233-04:002011-09-07T09:51:43.233-04:00Andy, sorry to hear that this crash is so bad. I&#...Andy, sorry to hear that this crash is so bad. I've got a cardiologist appointment in a few weeks: I'm wondering if you think it's worth all this jumping thru hoops so the doctors can conclude there is little wrong with us that they can measure? It took me days and days to recover from the tilt table test, and by the sound of it this one was worse for you.<br />HeatherAnonymousnoreply@blogger.com